 |
| Bob Miller |
Bob Miller on Hunger Strike: Send This 1-Minute Email to Get FDA Approval for Ampligen
February 1, 2013, Phoenix Rising
by Sasha
Bob Miller has started a hunger strike to push for FDA approval of
Ampligen. He and his wife, Courtney Alexander, who are well-known for
drawing President Obama’s attention to the plight of people with
ME/CFS, urge us not to do the same.
Instead, they’d like us to send the email below, alerting key
decision-makers to his strike, to add pressure to approve Ampligen as
a therapy for ME/CFS.
The FDA is expected to announced its decision sometime around 2nd February – this Saturday – so there’s no
time to lose.
Wherever you are in the world, please use Bob’s template to
email, and do it right now. It takes less than a minute: I’ve
already sent mine.
Bob’s message
Yesterday January 29th, I began a hunger strike seeking FDA
approval of Ampligen, the only medication in FDA-approved clinical
trials for Chronic Fatigue Syndrome, (ME/CFS).
The FDA Advisory Committee voted Ampligen is safe given the
serious nature of CFS and the critical unmet need of patients.
Please support access to Ampligen for ALL ME/CFS PATIENTS by
sending a note like the one below to the Secretary of Health Kathleen
Sebelius, Assistant Secretary of Health Dr Howard Koh, FDA
Commissioner Dr Margaret Hamburg, and FDA CDER Director Dr Janet
Woodcock and Deputy Director Dr Sandra Kweder.
You can just copy and paste the email below.
Please also email or call your Congressional Representatives and
Senators (look them up here
and just click on your state) and ask them to investigate why the FDA
refuses to approve the ONLY medication for CFS despite safe testing
for 20 years. This is a health crisis!
The email
Subject: CFS patient starts hunger strike for FDA
approval of Ampligen
“Long-time ME/CFS patient Robert Miller from Reno, Nevada began
a hunger strike in advance of the FDA’s Feb. 2nd deadline to decide
on Ampligen, the ONLY medication in clinical trials for my illness. I
support Mr. Miller because my life has been stolen by ME/CFS and I
need real treatment options. We have waited 20 years, and we can’t
wait any longer. The FDA Advisory Committee voted Ampligen is safe
enough to market because CFS is so serious and there are NO
medications to treat patients. Please don’t let the FDA reject the
only medication CFS patients can hope for any time soon.”
Your Full Name Here:
Address Here:
Years ill:
Address Here:
Years ill: