Friday, October 18, 2013

Chronic Fatigue Syndrome Patients Feel Increasingly Isolated

Source: Female First, 20 September 2013

By Taryn Davies

Sufferers of Chronic Fatigue Syndrome (CFS) are feeling increasingly isolated due to their family and friends’ lack of understanding of their condition, a study has revealed.

The study, carried out by talkhealth, one of the UK’s leading online social Health communities, revealed that a massive 70 per cent of CFS sufferers felt that their family and friends did not understand their condition and appreciate the effect it had on their lives.

Furthermore, nearly half of the respondents felt that their condition had not been taken seriously by a medical professional, adding to their feelings of isolation.

The study showed that the top five most common symptoms experienced by CFS sufferers are tiredness after exertion, un-refreshing sleep, muscle and joint pain, chronic physical exhaustion and cognitive difficulties such as memory loss.

Dr Jon Rees, a spokesperson for talkhealth comments:
"Chronic fatigue syndrome is something I see surprisingly often as a GP. It is an extremely frustrating condition not only for patients who often feel that their problems are not taken seriously but also for relatives and friends who may struggle to understand a condition that has no outward signs of physical illness. Patients may also experience cynicism from some people in the medical profession including doctors, who do not recognise CFS as a true medical condition. However GPs are increasingly realising the true impact of the symptoms and are better equipped to offer support and onward referral to specialist services."

Dr Rees continues:
"It is vital that patients receive adequate support as CFS can have a huge impact on their quality of life. They must be fully assessed for any underlying cause that can be treated, such as underactive thyroid or coeliac disease but if no cause can be identified and the symptoms are significant, referral to a specialist chronic fatigue service can often be useful."
Chronic fatigue syndrome (CFS), affecting 250,000 people in the UK, causes persistent fatigue (exhaustion) that affects everyday life and doesn't go away with sleep or rest.

The condition is also known as ME, which stands for myalgic encephalomyelitis. Myalgia means muscle pain and encephalomyelitis means inflammation of the brain and spinal cord. Both CFS and ME are commonly used terms.

1 comment:

  1. Vernon has betrayed CFS Patients and put them at extremre risk.

    Do you expect that the IOM will overrule their own 10 years of rulings on CFS?

    Ask HSS Sebelius: Do you believe that another IOM Panel on ME/CFS based on the fact that they have consistenly ruled by findings of facts over the last ten years including the latest 2013 VA IOM report, that CBT/GET are the most effective therapies for CFS and that immunotherapy and antiviral therapy are ineffective with regards to treatment?

    This is thier rulings from 2001 to 2013 from all evidence considered.

    Chronic fatigue For Gulf War veterans who meet the criteria for diagnosis of
    syndrome (CFS) CFS, the committee recommends:
    • use of cognitive behavioral therapy and exercise therapies
    because they are likely to be beneficial;

    • monitoring the results of studies of the efficacy and
    effectiveness of NADH, dietary supplements,
    corticosteroids, and antidepressants other than SSRIs;

    • because immunotherapy and prolonged rest are unlikely
    to be beneficial, they should not be used as treatments;

    • SSRIs are unlikely to be beneficial and are not
    recommended unless they are used as treatment for
    persons with concurrent major depression; and

    • treatments effective for CFS should be evaluated in Gulf
    War veterans who meet the criteria for CFS.

    This is what the IOM thought about CFS and ME in January of this year in their 2013 Report on Chronic Multisymptom Illness (formerly Gulf War Illness). The IOM accepts without question a 2001 work by Wessely's crony Michael Sharpe claiming ME is a "functional somatic syndrome" (psychosomatic). The IOM believes ME is just another name for CFS.

    "The common thread among the terms is that symptoms experienced by patients cannot be explained as pathologically defined, or organic, disease (Sharpe and Carson, 2001). Such syndromes as irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS, also called myalgic encephalomyelitis), and fibromyalgia often are included in this group of unexplained illnesses, as are chronic unexplained symptoms that do not meet case definitions for IBS, CFS, fibromyalgia, and other functional somatic syndromes that have specified diagnostic criteria

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